LAM – A rare and progressive lung disease that affects women
For many women diagnosed with lymphangioleiomyomastosis (LAM), it may be the first time they have heard of this very rare lung disease that affects almost exclusively women. The diagnosis may be difficult because LAM shares many symptoms with other more common lung disorders such as emphysema. Cysts in the lungs are a common finding as are kidney tumors. LAM is frequently a progressive disease that may lead to limited mobility and the need for supplemental oxygen. Some LAM patients may eventually need lung transplants.
The University of Michigan's LAM Clinic was one of the first clinics to join the LAM Foundation Clinical Research Network (LFCRN)in 2008. MeiLan Han, M.D., M.S., Asst Professor, Division of Pulmonary and Critical Care Medicine, Director of Women's Respiratory Clinic, is also the Medical Director of the LAM Clinic at the University of Michigan Health System (UMHS). The LAM Clinic is part of the U-M Women's Respiratory Clinic and is still the only LAM Clinic in Michigan, and one of a few in the Midwest.
More than 2,000 women with LAM have been identified as a result of the Foundation's efforts. The Foundation estimates that as many as 250,000 women worldwide may have LAM, but are undiagnosed or misdiagnosed with asthma, emphysema or pulmonary bronchitis.
For women facing this rare disease it is important for them to have the following:
1) A physician who is familiar with LAM and can make a correct diagnosis
2) A physician who has access to available therapies and clinical trials.
3) Access to lung transplant evaluation which some LAM patients eventually need.
As LAM can affect other organs including the kidneys, the LAM Clinic at UMHS provides patients with coordinated, multi-disciplinary care.
LAM Clinic Appointment Number: 734-998-5759
