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Scleroderma Clinical Trials Consortium
(www.sctc-online.org)

This is an international organization of scleroderma clinical researchers. The webpage contains information about how to contact a local scleroderma researcher; a listing of active scleroderma trials and past copies of the SCTC journal, “Scleroderma Care and Research”.

Scleroderma Foundation – Michigan Chapter
www.scleroderma.org/chapter/michigan)

The Scleroderma Foundation is the largest patient-based organization in the United States. They offer support and patient education as well as work to foster public awareness and research. The Michigan Chapter is particularly vital and works with the University of Michigan Scleroderma Program on a variety of fronts. All local patients and family members are encouraged to learn more about this organization.

Scleroderma Research Foundation
(www.srfcure.org)

The Scleroderma Research Foundation has unique and visionary programs in research, public awareness and fund raising.

International Scleroderma Network
(www.sclero.org)

The ISN is an excellent source of information about scleroderma. Largely web-based, they work hard to post the highest quality of information and in many languages. Scleroderma is a world-wide disorder.

Patient Voices: Scleroderma
(http://www.nytimes.com/interactive/2010/07/28/health/healthguide/TE_SCLERODERMA.html?th&emc=th)

The New York Times which has an interactive article and links about scleroderma.

Pulmonary Hypertension Association
(http://www.phassociation.org)

This national organization is a model for collaboration between patients, physicians and other care givers and the pharmaceutical industry. This webpage features rich information for patients and health professionals.

 

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