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SCI Links of Interest

This information is for general educational purposes only. The U-M Spinal Cord Injury Model System does not endorse any product or service.

ADA Anniversary Toolkit
The NIDRR-funded Southeast ADA Center and its State Leadership Network have released an ADA Anniversary Toolkit for use by the public and media. The kit features the latest news, resources, research findings, and statistics on the ADA and other accessibility legislation.

Spinal Cord Injury Rehabilitation Evidence 
The Spinal Cord Injury Rehabilitation Evidence (SCIRE) is a synthesis of the research evidence underlying rehabilitation interventions to improve the health of people living with SCI. 

Ann Arbor Center for Independent Living (AACIL)
AACIL provides peer mentoring and co-leads independent living classes for participants in theU-M Spinal Cord Injury Model System, and is a long-term partner with the U-M SCIMS in research, outreach and other activities.

Determined2heal
The non-profit organization and personal Web site was created by teenager Josh Basile after he had a C4-C5 spinal cord injury. Provides information to help simplify the difficult transition families of newly injured patients face when dealing with paralysis.

 

U.S. Government-based Disability Links:

Americans with Disabilities Act (ADA)
This site describes the law and provides information about new or proposed regulations, recent court cases and enforcement. Includes sources of technical assistance and information about how to file a complaint.

Disability.gov
This a federal government website that lists information by disability-related programs and services by topic (benefits, civil rights, community life and more) and also state so you can find information and resources available to you in your state.

Medline Plus Spinal Cord Injuries
Medline Plus is a service of the U.S. National Library of Medicine and the National Institutes of Health with links to articles written for laypeople on topics such as treatment, coping, specific conditions, finding a neurosurgeon and many others. Resources in Spanish and on-line tutorials.

National Institute of Neurological Disorders (NINDS) and Stroke Spinal Cord Information Page
NINDS is a part of the National Institutes of Health. The site has lists of SCI-related organizations and their contact information, provides access to scientific results and consumer information. A link leads to studies on SCI and related conditions that are recruiting participants.

National Institute on Disability and Rehabilitation Research (NIDRR)
NIDRR provides leadership and support for a comprehensive program of research related to the rehabilitation of individuals with disabilities. The U-M Spinal Cord Injury Model System is funded by NIDRR.

National Rehabilitation Information Center (NARIC)
NARIC collects and distributes the results of research funded by NIDRR.

Assistive Technology Links:

These sites have information on the use of technology for people with disabilities.

ABLEDATA
ABLEDATA is the premiere source for information on assistive technology and is sponsored by the National Institute on Disability and Rehabilitation Research (NIDRR).  

Rehabilitation Engineering and Assistive Technology Society of North America (RESNA)
An interdisciplinary association of people with a common interest in technology and disability.

U-M Model SCI Care System Resource Guide Technology Section (PDF)
A wealth of information on assistive technology, including funding information.

Webcourses:

Disability RightsCourse www.DisabilityRightsCourse.org

A free, self-paced webcourse available 24/7 that provides an overview of disability rights laws. The course takes approximately 2 hours and includes real life scenarios, quizzes and a final exam.

Continuing Education Credits: * Commission on Rehabilitation Counselor Certification (CRCC): 2 credit hours

Questions about the course:
Contact the New England ADA Center
elearning@NewEnglandADA.org
617-695-0085 voice/tty
800-949-4232 voice/tty (CT, MA, ME, NH, RI, VT)
Questions about the ADA:
Contact your regional ADA Center
800-949-4232 voice/tty
www.adata.org

Other SCI Links:

Access-Able
A detailed source of information about travel opportunities, both nationally and internationally. Viewers can select a destination and find listings of accessible accommodations, transportation and attractions.

Access Anything
Access Anything is a sports and travel newsletter offering travel tips about accessible skiing and other sports. One of the writers is a skier who has an SCI and is devoted to showing others how to find accessible vacation spots and sports.

American Spinal Injury Association (ASIA)
ASIA fosters research on prevention, improving care and cure. ASIA is committed to educating its members, other health care professionals, those with SCI and the public about many SCI issues. This site includes educational materials, resources for obtaining information published in medical journals and other links.

CareCure Community
Forums include communication between Dr. Wise Young (a U.S. neurosurgeon, scientist and leader in SCI treatment and cure) and people with SCI. This site is a great source for support and advice for people who have a new SCI from those who have lived with the condition. CareCure provides the best and latest information on spinal cord injury treatment, care giving, cure, funding, pain, sex, links, research and current studies.

Christopher and Dana Reeve Paralysis Resource Center
The Reeve Paralysis Resource Center, a program of the Christopher Reeve Paralysis Foundation, was created in 2002 to provide a comprehensive, national source of information for people living with paralysis and their caregivers to promote health, foster involvement in the community and improve quality of life.

Cure Paralysis Now
A source of information about functional recovery and cure-related research with a variety of links to other sites.           

FacingDisability For Families Facing Spinal Cord Injuries
Facing Disability is a web resource with more than 1,000 videos drawn from interviews of people with spinal cord injuries, their families, caregivers and experts.

Facts and Figures
Based on information from the National Spinal Cord Injury Database, this site provides the most current statistics on spinal cord injury in the United States today. Includes information on the numbers of new injuries, people living with SCI, length of hospitalization, causes of injury and life expectancy. Links to free and for-a-fee articles.

Independent Living Centers USA
Listings by state of nearly 500 Independent Living Centers. Includes addresses, phone numbers and links to Web sites. Articles about the IL movement by nationally respected authors.

Independent Living Institute
A source of information and training materials on numerous topics related to independent living such as personal assistance, technical assistance, peer support and advocacy.

The Miami Project to Cure Paralysis
Located at the University of Miami School of Medicine, the Miami Project is the world's largest research center dedicated to finding a cure for paralysis that results from spinal cord injury.

Michigan Chapter of the Paralyzed Veterans of America
This state chapter of PVA is a partner and supporter of the U-M SCI Model System.

Michigan Disability Rights Coalition (MDRC)
A vast amount of information of interest to Michigan residents, though much of it is applicable to those living elsewhere. MDRC is building a state-wide alliance of Michigan's disability community through activism, education and advocacy.

mobileWOMEN.org
This online magazine for women in wheelchairs was created by women and features articles and tips on health, sex, fashion, available studies and other subjects.

National Center on Physical Activity and Disability
A rich source of information regarding physical activity, related equipment and health maintenance. The site does not focus on SCI, but rather has information pertinent to those with a variety of disabilities.

National Spinal Cord Injury Association
Founded in 1948, the association is the nation's oldest and largest civilian organization dedicated to improving the quality of life for hundreds of thousands of Americans living with the results of spinal cord injury and disease and their families.

New Mobility
A monthly magazine focusing on disability lifestyle, culture and resources.

Northwest Regional Spinal Cord Injury System
The mission of the NWRSCIS is to improve the lives of people with SCI through excellent patient care, research and education. Consequently, the NWRSCIS strives to provide specialized care to persons with SCI, to conduct clinically relevant research and to disseminate the most useful, evidence-based information to people with SCI, their families and professionals.

Paralyzed Veterans of America (PVA)
Established to serve the needs of veterans with spinal injuries, PVA provides a wealth of services; advocates for quality health care; promotes research and education; and advocates for legislation to enhance the civil rights and opportunities of those with disabilities. The Michigan Chapter of PVA is a partner and supporter of the U-M Spinal Cord Injury Model System.

Post-Polio Health International (PHI)
Formerly known as GINI, this site contains valuable information for people who are ventilator users, their families and the health professionals who treat them.

SCI-Info-Pages
This not-for-profit, non-commercial site is an informative resource for those with SCI or other disabling injuries or diseases of the spine. Meant to be a "best of the Web" site, it links to other sites about sports, research, rehabilitation facilities, medical equipment companies, travel and leisure, and more.

SEDL Disability Research
Through the Center on Knowledge Translation for Disability and Rehabilitation Research (KTDRR Center), SEDL is building on the work of its National Center for the Dissemination of Disability Research (NCDDR) to assist disability and rehabilitation researchers to get their research results into the hands of the people who can use the information—employers, policymakers, service providers, and people with disabilities and their families.

Spinal Cord Injury Information Network
Excellent information on an extensive range topics for people with SCI, clinicians, and researchers, including sections on medical and psychosocial care, equipment and accessibility issues. Includes Spinal Cord Injury Facts and Figures, a comprehensive description of persons with SCI and their health care expenditures. Sponsored by the University of Alabama, one of 14 Spinal Cord Injury Model System in the U.S.

Spinal Cord Injury Resources
An extensive list of well-organized links to a vast number of disability-related sites.

Spinalpedia
SPINALpedia is a social mentoring network and video archive that allows the spinal cord injury community to motivate each other with the knowledge and triumphs gained from our individual experiences.

Sports and Spokes
Sponsored by the Paralyzed Veterans of America, this magazine focuses on sports and recreation opportunities for people with spinal injuries.

ThinkFirst National Injury Prevention Foundation
The foundation educates individuals, community leaders and the creators of public policy to help prevent brain, spinal cord and other traumatic injuries. An award-winning public education program targets children and teens, teaching them about personal vulnerability and risk taking.


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