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DVD: 30 minutes
View the 1 min., 33 sec. film trailer (on YouTube)
Contact the Producers
Linda K. Strodtman,
Assistant Prof. of Nursing
Clinical Nurse Specialist
Asst. Professor of Nursing
University of Michigan
400 N. Ingalls, Rm. 2178
Ann Arbor, MI 48109-5482
Maureen G. Giacomazza, MA, RN
Clinical Nurse Consultant
Pediatric Palliative Care
Program, University of Michigan Health System
Adjunct Clinical Instructor,
University of Michigan
School of Nursing
1500 E. Medical Center Dr.
F7902 Mott, Box 5233
Ann Arbor, MI 48109-5233
Kenneth J. Pituch, MD
David G. Dickinson Collegiate Professor of Pediatrics and Communicable Diseases and Professor of Pediatrics and Communicable Diseases, Medical School
C.S. Mott Children's Hospital
Ann Arbor, MI 48109-4280
Difficult Decisions in Pediatric Care:
Just Because We Can, Should We?
"Difficult Decisions in Pediatric Care: Just Because We Can, Should We?" explores the ethical dilemma parents face when told that their child "needs" a particular treatment, surgery or intervention, and palliative care options are not offered. The stories demonstrate the benefits for both patient and family when palliative care is brought into the mix, either in conjunction with traditional medical therapies or on its own. The film explores the benefits of treatment consistent with the individual lifestyle and values of the patient and family.
The voices of patients and families are critical to understanding relationships in today's highly complex healthcare delivery system. And in any chronic illness involving children, there has to be, as one of the fathers notes, "special considerations."
Another difficult process for patients, families and healthcare professionals alike is the shift that occurs when care goals move from a "curative" to a "comfort" focus, and the possibilities of suffering or death are contemplated. The voices of families who have experienced this shift provide powerful teaching moments for health professionals.
"The film beautifully illustrates the complexity of decision-making among families of children with serious illness and health care providers, as well as the tremendous value of integrating a palliative approach. It will serve as a wonderful teaching tool."
Joanne Wolfe, MD, MPH
Director, Pediatric Palliative Care
Children's Hospital Boston, Dana-Farber Cancer Institute
Viewers of this film will find themselves exploring their own reactions to these emotional discussions. They will be able to identify common conflicts within care team member roles, and gain insight into facilitating these difficult conversations with patients and their families.
"This video does so much better than tell us, it shows us how and why pediatric palliative care is essential in the care of seriously ill children and their families."
Stephen Liben, MD
Associate Professor of Pediatrics, McGill University, Canada;
Co-editor, Oxford Textbook of Palliative Care for Children