Education of Health Professionals

See also: Selected Books

Selected Internet Sites (Updated 9/26/11)

Education Resources for professionals

• American Association of Colleges of Nursing. (1998). Peaceful Death: Recommended Competencies and Curricular Guidelines for End-of-Life Nursing Care
• American Association of Colleges of Nursing - ELNEC project
• The Center for Palliative Care Education, University of Washington
  
• Education on Palliative and End-of-Life Care, The EPEC Project
• End of Life Physician Education Resource Center (EPERC)
• The Initiative for Pediatric Palliative Care
• National Institutes of Nursing Research on the Science of Compassion Summit
• Toolkit for Nurturing Excellence at End-of-Life Transition (TNEEL)
  
• Toolkit of Instruments to Measure End of Life. Joan Teno, of the Center for Gerontology and Health Care Research at Brown University

Professional Organizations

• Hospice and Palliative Nurses Association
• National Hospice and Palliative Care Organization
• American Academy of Hospice and Palliative Medicine

Professional Certification

• National Board for Certification of Hospice and Palliative Nurses
• American Academy of Hospice and Palliative Medicine

Pediatric Resources

• The National Alliance for Children with Life-Threatening Conditions
• Compassionate Passages, Inc
• The Compassionate Friends

Resources in Michigan

• The Michigan Hospice and Palliative Care Organization
  (Has a link to The Michigan Alliance for Pediatric Palliative Services [MAPPS])

Other Resources

• Agenet
• American Association for Retired Persons
  • Grief and Loss Statistics
• Americans for Better Care of the Dying
• Ethical Wills, Preserving your Legacy of Values (Barry Baines)
  
• Griefnet: A Community of persons dealing with grief, loss and death
  
• Growth House Publishing
  
• Hospice Net
• National Cancer Institute Issues of End of Life
  
• National Family Caregivers Association and the National Alliance for Caregiving
  
• NIH State-of-the-Science Conference Statement on Improving End-of-Life Care- December 6-8, 2004
  

Advance Directives Sites

• American Bar Association - Consumer's Tool Kit for Health Care Advance Planning
  
• My Voice-My Choice Your Advance Directives Information
• Five Wishes
• University of Michigan Health System Advanced Directives/Living Wills

Reminiscence Therapy

• Growth House Publishing
• Tell me your Stories - oral history
• Who Gets Grandma's Yellow Pie Plate? Your Guide to Passing on Personal Belongings

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Selected Books (Updated June 1, 2007)

• Albom, M. The Five People You Meet in Heaven (2003). NY: Hyperion Press.
• Albom, M. (1997). Tuesdays with Morrie. NY: Bantam Doubleday Dell Publishing Group, Inc.
• Baines, B. K. (2002). Ethical Wills: Putting your Values on Paper. Cambridge, MA: Perseus Publishing
• Baines, B. K. (2001). The Ethical Will Writing Guide Workbook - preserving your legacy of values for your family and community. Minneapolis, MN: Josaba Limited.
• Berger, A.M., Portenoy, R.K. and Weissman, D.E. (eds) (2002). Principles and Practice of Palliative Care and Supportive Oncology 2nd ed. Philadelphia, PA: Lippincott Williams & Wilkins
• Berger, A.M & deSwaan, C.B. (2006) Healing Pain: The Innovative Breakthrough Plan to Overcome Your Physical Pain and Emotional Suffering. NY: Rodale Publishers.
• Buscaglia, L. (1982). The Fall of Freddie the Leaf: A Story of Life for All Ages. Thorofare, NJ:  Slack, Inc.
• Buckman, R. (1992). "I Don't Know What to Say . . .": How to Help and Support Someone Who is Dying. New York, NY: Vintage Books.
• Buckman, R. (1992). How to Break Bad News: A Guide for Health Care Professionals. Baltimore: Johns Hopkins University Press.
• Byock, I. (1997). Dying Well: The Prospects for Growth at the End-of-Life. NY: Riverhead Books.
• Callanan, M., & Kelley, P. (1992). Final Gifts: Understanding the Special Awareness, Needs, & Communications of the Dying. New York, NY: Bantam Books.
• Cassell, E. (1991). The nature of suffering and the goals of medicine. NY: Oxford University.
• Christ, G. H. (2000). Healing Children's Grief: Surviving a Parent's Death from Cancer. New York, NY: Oxford University Press.
• Clark, C. C. (1999). Integrating Complementary Procedures into Practice. NY: Springer Co.
• Curtis, J. R. & Rubenfeld, G.D. (2000). Managing Death in the ICU: The Transition from Cure to Comfort. Oxford Press.
• DeHennezel, M. (1997). Intimate Death: How the Dying Teach Us How to Live. NY: Alfred A. Knopf, Inc.
• Despelder, L.A. & Strickland, A.L. (2005). The Last Dance: Encountering Death and Dying. 7th ed. Boston: McGraw Hill.
• Dossey, B. M., Keegan, L., & Guzetta, C. (1999). Holistic Nursing: A Handbook for Practice (3rd Ed.). Gaithersburg, MD: Aspen Publishers.
• Dossey, L. (1996). Prayer is Good Medicine. New York, NY: Harper Collins.
• Dower, L. & Lister, E. (2001) I Will Remember You: What to Do When Someone You Love Dies: A Guidebook Through Grief for Teens. London: Harper Collins, Publishers.
• Doyle, D., Hanks, G. W. C., & MacDonald, N. (Eds.). (1998). Oxford Textbook of Palliative Medicine (2nd Ed.). New York, NY: Oxford University Press.
• Epstein, F. & Horwit, J. (2003). If I get to five: What children can teach us about courage and character. NY: Henry Holt and Co.
• Ferrell, B. R., & Coyle, N. (Eds.) 2nd ed.(2005). Textbook of Palliative Nursing. New York, NY: Oxford University Press.
• Field, M.J. & Behrman, R.(2003). When Children Die: Improving Palliative and End-Of-Life Care for Children and Their Families. National Academies Press.
• Harrold, J., & L, J. (1998). Good Dying: Shaping Health Care for the Last Months of Life. Binghamton, NY: The Haworth Press, Inc.
• Holder, J.S & Clanton, J.A. (2004). Parting: A Handbook for Spiritual Care Near the End of Life. Chapel Hill:  The University of North Carolina Press
• Groopman, J. (2004). The Anatomy of Hope: How People Prevail in the Face of Illness. NY: Random House.
• Kane, J., & Warner, C. (Eds). (1999). Touched by a Nurse: Special Moments that Transform Lives. Philadelphia, PA: Lippincott Williams & Wilkins Publishers.
• Karnes, B. (1999). Gone from My Sight: The Dying Experience. Stilwell, KS: Barbara Karnes Books, Inc.
• Kolcaba, K. (2003). Comfort Theory and Practice: A Vision for Holistic Health Care and Research.  NY: Springer Publishing.
• Kuebler, K.K., Berry, P.H. & Heidrich, D.E. (2002). End of Life Care: Clinical Practice Guidelines. Philadelphia, PA: Saunders.
• Kuebler, K.K., Davis, M. P.; & Moore, C. (2005). Palliative Practices: An Interdisciplinary Approach. St. Louis: Elsevier Mosby.
• Kuebler, K. & Esper, P. (2002). Palliative Practices from A-Z for the Bedside Clinician. Pittsburgh, PA: Oncology Nursing Society.
• Kuhl, D. (2002). What Dying People Want: Practical Wisdom for the End-of-Life. New York, NY: Public Affairs/Perseus Books.
• Lane, D. (1994). Music as Medicine. Grand Rapids, MI: Zondervan Publishing House.
• Lang, S. S., & Pratt, R. B. (1994). You Don't Have to Suffer. NY: Oxford University Press.
• Lattanzi-Licht, M.; Mahoney, J. J. & Miller, G. W. (1998). The Hospice Choice: In Pursuit of a Peaceful Death. NY: Simon & Schuster. Fireside book
• Lipson, J. G., Dibble, S. L., & Minarik, P. A. (1996). Culture & Nursing Care: A Pocket Guide. San Francisco, UCSF Nursing Press.
• Lynn, J. & Harold, J. (1999). Handbook for Mortals: Guidance for People Facing Serious Illness. New York, NY: Oxford University Press.
• Matzo, M. L. & Sherman, D. W. (Eds.). (2006). 2nd ed. Palliative Care Nursing: Quality Care to the End-of-Life. New York, NY: Springer Publishing Company.
• Matzo, M.L. & Sherman, D. W. (2003). Gerontologic Palliative Care Nursing. St. Louis: C.V.Mosby
• Meyers, C. (1998). A Good Death: Challenges, Choices and Care Options. Mystic, CT: Twenty-Third Publications.
• Mundy, M. & Alley, R. W. (1998). Sad Isn't Bad: A Good-Grief Guidebook for Kids Dealing With Loss. Elf-Help Books for Kids. St. Meinrad, IN: Abbey Press.
• Nuland, S. B. (1993). How We Die.  NY: Vintage Books, Random House.
• O'Brien, M. E. (2004). Spirituality in Nursing: Standing on Holy Ground. Boston: Jones & Bartlett.
• Oxford International Centre for Palliative Care, Palliative Care Pocket Consultant, 'A reference guide for symptom management in palliative care', 2nd ed., ISBN 0-7872-8701-6.
• Puchalski, C.L. (2006). A Time for Listening and Caring: Spirituality and the Care of the Chronically Ill and Dying. NY: Oxford University Press.
• Quill, T. E. (2001). Caring for Patients at the End-of-Life: Facing an Uncertain Future Together.
  NY: Oxford University Press.
• Quill, T. E. (1996). A Midwife Through the Dying Process: Stories of Healing and Hard Choices at the End of Life. Baltimore: Johns Hopkins University Press.
• Reed, F. C. (2003). Suffering and Illness: Insights for Caregivers. Philadelphia: F.A. Davis.
• Remen, R. N. (1996). Kitchen Table Wisdom: Stories That Heal. New York, NY: Riverhead
• Schuster, J. L. & Kabcenell, A. (2000). Improving Care for the End of Life: A Sourcebook for Health Care Managers and Clinicians. The Institute for Healthcare Improvement, NY: Oxford University Press.
• Sheehan, D. & Forman, W. (2003). Hospice and Palliative Care: Concepts and Practice, 2nd ed. Boston: Jones & Bartlett, Publishers.
• Sherbun, M. (2006). Caring for the Caretaker: Eight Truths to Prolong Your Career. Boston: Jones and Bartlett Publishers.
• Schwartz, A. L. (2004). Pocket Guide to Managing Cancer Fatigue. Boston: Jones & Bartlett.
• Shelly, J.A. & Miller, A.B. (1999). Called to Care: A Christian Theology of Nursing. Downers Grove, IL: InterVarsity Press.
• Sourkes, B.M. (1996) Armfuls of Time: The Psychological Experience of the Child With a Life-Threatening Illness (paperback). Pittsburgh: University of Pittsburgh Press.
• Taylor, G.J. & Kurent, J.E. (2003). A Clinican's Guide to Palliative Care. Blackwell Publishing.
• Wanzer, Sidney and Glenmullen, Joseph. (2007). To Die Well: Your Right to Comfort, Calm, and Choice in the Last Days of Life. Cambridge, MA: De Capo Press, Perseus Books.
• Wrede-Seaman, L. (1999). Symptom Management Algorithms: A Handbook for Palliative Care, 2nd ed., intellicard. SBN 1888411074 1-888411-07-4
• Wrede-Seaman, L. (2005). Pediatric Pain and Symptom Management Algorithms for Palliative Care. Intellicard SBN 1888411155
• Young, C. & Koopsen, C. (2005). Spirituality, Health, and Healing. Thorofare, NJ. Slack, Inc.
• Young-Mason, J. (1997). The Patient's Voice: Experiences of Illness. Philadelphia, PA: F. A. Davis Co.

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