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The Muscular Dystrophy Association (MDA) Clinic at the University of Michigan

The MDA Clinic
The Muscular Dystrophy Association (MDA) Clinic at the University of Michigan is a multidisciplinary clinic that sees children and adults.  We see patients with suspected or confirmed neuromuscular disorders, including the muscular dystrophies, inherited myopathies, spinal muscular atrophy, myasthenia gravis, and inherited and acquired neuropathies.  The MDA clinic is supported in part by the Muscular Dystrophy Association (MDA), as well as through the generous support of private donors.

Appointments
If you are interested in an evaluation and continued care at the University of Michigan MDA Clinic, please call our clinic coordinator, Kim Creamer, at (734) 647-3863.  Detailed instructions, including how to get here, parking, etc., will be provided to you.

What to expect during a visit
The MDA Clinic meets weekly on Friday mornings.  Children and adults will be clinically assessed by physicians from Neurology (Dr. Sindhu Ramchandren) and Physical Medicine and Rehabilitation (Dr. Joseph Hornyak), and will have access to physical and occupational therapy, and genetic counseling.  We can also schedule same-day consultations for orthotics as well as EMG testing, typically done later in the afternoon on the day of your visit.  We often assess the entire family during the course of a visit, and can arrange for genetic testing if needed.  During routine follow-up visits, we track the progression of the disease to provide you information on what changes to expect in future years.

Research
The University of Michigan MDA Clinic is committed to improve the functional outcomes of its patients and actively participates in clinical research.  Participation in clinical research is voluntary and refusal will not affect the care patients receive.

To learn more about the research being done in Dr. Ramchandren's lab, please visit Dr. Ramchandren’s Lab website.

Locations
MDA Neuromuscular Clinic
325 E. Eisenhower Parkway, Ste 100
Ann Arbor, MI 48108

Supporting the clinic (donations, gifts)
If you are interested in supporting the MDA clinic at the University of Michigan, please contact Halla Jomaa, Development Officer, Neurology and Neurosurgery, at hnjomaa@umich.edu, or call (734) 763-5121.

Useful Links

  1. General resource for families diagnosed with genetic disorders: www.medicalhomeportal.org
  2. Parent-run organization to end Duchenne Dystrophy: www.parentprojectmd.org
  3. Website to research active clinical trials: www.clinicaltrial.gov

Staff member for the MDA Clinic at the University of Michigan

Kimberly Creamer: Clinic Coordinator-(734) 647-3863
Sindhu Ramchandren, MD, MS: Neurology
Joseph Hornyak, MD, PhD: Physical Medicine and Rehabilitation
Betsy Howell, MS, PT: Physical Therapy
Matthew Traynor: Wheelchair seating
Kimberly Amburgey, MS: Genetic Counselor
Colleen Connolly: MDA Representative