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The Duchenne Muscular Dystrophy (DMD) Clinic at the University of Michigan

The DMD Clinic
The Duchenne Muscular Dystrophy (DMD) Clinic at the University of Michigan is a multidisciplinary clinic that sees children and adults with a suspected or confirmed diagnosis of Duchenne or Becker muscular dystrophy.  We also have a Transitional Care Clinic, which specifically focuses on the care of teenagers and young adults with neuromuscular conditions transitioning to adulthood.  The DMD clinic is sponsored in part by the Muscular Dystrophy Association (MDA), as well as through the generous support of private donors.

Appointments
If you are interested in an evaluation and continued care at the University of Michigan DMD Clinic, please call our clinic coordinator, Kim Creamer, at (734) 647-3863.  Detailed instructions, including how to get here, parking, etc., will be provided to you.

What to expect during a visit
The DMD clinic meets on Thursday Mornings.  Our clinic team includes specialists in Neurology, Cardiology, Pulmonary Medicine, Orthopedics, Physical Medicine and Rehabilitation, Physical and Occupational Therapy, Genetic Counseling, Neuropsychology, Social Work, and Dietary.  The DMD clinic utilizes a 2-day format for those patients who need tests such as cardiac MRI, echocardiogram, pulmonary function tests, polysomnograms, etc., prior to meeting the specialists; our clinic coordinator, Kim Creamer, will assist with the scheduling of all appointments.

Research
The University of Michigan DMD Clinic is committed to improve the functional outcomes of its patients and actively participates in clinical research.  Participation in clinical research is voluntary and refusal will not affect the care patients receive.

To learn more about the research being done in Dr. Ramchandren's lab, please visit Dr. Ramchandren's Lab website.

Location
Duchenne Muscular Dystrophy Clinic
C.S. Mott Children’s Hospital
1500 E. Medical Center Drive, 6th floor
Ann Arbor, MI 48109

Supporting the clinic (donations, gifts)
If you are interested in supporting the DMD clinic at the University of Michigan, please contact Halla Jomaa, Development Officer, Neurology and Neurosurgery, at hnjomaa@umich.edu, or call (734) 763-5121.

Useful Links

  1. General resource for families diagnosed with genetic disorders: www.medicalhomeportal.org
  2. Parent-run organization to end Duchenne Dystrophy: www.parentprojectmd.org
  3. Website to research active clinical trials: www.clinicaltrial.gov

Staff member for the DMD Clinic at the University of Michigan

Kimberly Creamer: Clinic Coordinator- (734) 647-3863
Sindhu Ramchandren, MD, MS: Neurology
Joseph Hornyak, MD, PhD: Physical Medicine and Rehabilitation
Mark Russell, MD: Cardiology
Michelle Caird, MD: Orthopedic Surgery
Fauziya Hassan MBBS: Pulmonary Medicine
Betsy Howell, MS, PT: Physical Therapy
Matthew Traynor: Wheelchair seating
Ann Marie Ramsey, NP and Kathy Barnum, RT: Vent team
Angela Argento, PhD: Neuropsychology
Kimberly Amburgey, MS: Genetic Counselor
Colleen Connolly: MDA Representative