Support Groups and Programs
Parenting Support
- Holden Neonatal Intensive Care Unit Weekly Scrapbooks and Sandwiches - Every Thursday from 1 to 3 p.m. families of our NICU patients are invited to join our staff and each other for lunch and scrapbooking. Each participating family receives a 7” x 7” scrapbook and an assortment of supplies and tools. Participants share stories and photographs of their babies’ hospitalization. For more information, contact Brenda Miller at 734-615-7937 or bslomovi@med.umich.edu.
- DrinkWise - This program is for people with mild to moderate alcohol problems who want to eliminate the negative consequences of their drinking. DrinkWise is not for those who are severely dependent or alcoholic and require treatment approaches rather than educational ones. For more information.
Bereavement Support
- Walk to Remember and Tree Planting Memorial -This annual event is held each October for families of our Neonatal Intensive Care Unit, pediatric intensive care units, Birthing Center and fertility clinic, who have experienced the loss of an infant or pregnancy. The event is also open to the public, especially those community members who have experienced a pregnancy or newborn loss. The Arboretum co-sponsors the event. For more information, contact Sue Gibney at 734-763-4111 or sgibney@umich.edu.
- Remembering the Children of Mott - This is an annual memorial service of remembrance sponsored by the Department of Pastoral Care for families who have experienced the death of a child either during or following hospitalization. For more information, call 734-936-4041 or e-mail umhs-chaplain@med.umich.edu.
- Additional Grief Assistance Services
Condition-specific Support
Bleeding Disorders/Hemophilia
- Hemophilia Parent Group - Meets monthly to discuss issues related to hemophilia, resources, etc. For information, contact Laura Mcginity, LMSW, at 734-936-6393.
- Family Education Events for Hemophilia - Several community events are held each year for families with children with Hemophilia. The events promote support and education. For information, contact Laura Mcginity, LMSW, at 734-936-6393.
Brain Injury
- Summer Program - The focus of this program is to promote social success, community experiences and study smart skills in children and adolescents who are recovering from and adapting to a brain injury. The program is individually designed to meet a child/teen's treatment goals, with an emphasis on functional and fun-filled activities. The treatment day may include a combination of individual and group therapies, recreational therapeutic trips and specialized Parent Guidance and Support Group sessions. E-mail for additional information.
Brain Tumor
- The Brain Tumor Support Group meets on the third Tuesday of the month 7 p.m. - 8:30 p.m. in the Department of Neurology library on Level One of the Taubman Center. For more information or questions, please call 734-936-9071.
Cardiovascular
- ICD (Heart implant device) Conference - Annual conference for teens and families to promote education and support. E-mail for more information.
Cystic Fibrosis
- The Annual Cystic Fibrosis Family Conference - A conference for an adult audience of parents and other interested relatives or caregivers of children with Cystic Fibrosis seen at the UM CF Center. E-mail for more information.
Hearing Loss
- Sound Support - Hearing loss affects a child’s ability to hear speech and, in turn, delays a child’s speech and language development. For this reason, it is important to identify hearing loss in children at an early age and begin rehabilitation services as soon as possible. Sound Support is a program developed through a joint grant from the U-M Department of Otolaryngology, Head & Neck Surgery and the State of Michigan. It was created to improve the quality and timeliness of clinical care for pediatric hearing impaired patients, including diagnosis, treatment and rehabilitation of hearing loss. For more information.
Mobility
- CHAMP (Comprehensive Hand and Arm Movement Program) - CHAMP is a therapeutic intervention program that involves restricting use of the less-affected upper extremity (hand and arm) using a splint or other device as a constraint as well as use of bilateral motor activities to retrain use of the more affected extremity. This therapy is beneficial because it teaches people to overcome the learned nonuse of the affected arm and hand that developed in the early post-injury period. For more information.
- Special Needs Cycling Program - This program teaches children with special needs how to use a tricycle and a bicycle. Call our Physical Therapy and Rehabilitation Department for more information: 734-763-2554.
- Martial Arts Therapy - This adapted martial arts program has been designed to promote improved balance, gross motor coordination, strength and self-esteem in children working towards improvement of motor skills. Call our Physical Therapy and Rehabilitation Department for more information: 734-763-2554.
Trauma Burn
- In an Instant - This is a video created to teach the dangers of fire through first-person stories of children and teens who have suffered painful burn injuries. The video is available for use by schools, hospitals, fire departments and other groups nationwide. For information, contact Susan Polan at 734-998-8451 or susanmp@umich.edu, or visit our Web site.
In addition to the programs listed above, we offer a variety of condition-specific camps and numerous educational classes and programs
Health System Faculty & Staff: Have a support group or program you want to list on this page? If so, e-mail the following information to mottweb@umich.edu
1. Name of group/program2. Brief description of group/program (50 words or less).
3. Registration information, if appropriate.
4. Web site, phone number or e-mail where patients and families can get more information.
