Very small premature babies weigh less than 3 pounds and are
usually born more than 8 weeks early (after less than 32 weeks of
pregnancy). These babies:
- have very red, thin skin and very little fat
- have perfectly formed internal and external organs
- have organs that, though perfectly formed, are not mature
enough to function well for several weeks
- need special care in the hospital for at least 3 to 4 weeks
and often much longer until they are mature enough to be cared
for at home.
Very premature babies may need to be cared for in the hospital
until close to their due dates. If they do well, they may be
discharged as early as 4 to 5 weeks before their due date. If they
have more problems than average, they may stay in the hospital
past their due date.
What causes prematurity?
There are many causes of extreme prematurity. Sometimes a baby may
need to be delivered early because the pregnancy is causing a
health problem for the mother. Sometimes there is an infection in
the birth canal that causes the mother's water to break early or
to go into labor too early. Abnormalities of the mother's cervix
or uterus can also cause early delivery. Twins are often born
early.
What happens after the baby is born?
Because your baby is so small and premature, your baby will be
cared for in the special care nursery (SCN) for many weeks. Many
premature infants are sickest right after birth and gradually get
better as they get older. However, the very smallest infants may
have problems for the first 6 weeks. Ups and downs are a normal
part of a premature baby's early life, but they are very hard on
mom and dad.
The SCN seems to be a noisy and confusing place at first. However,
with time you get used to it. The staff in the SCN try to make
your baby as comfortable and secure as possible.
- Special beds
At first the baby is kept on an open warmer, a bed that keeps
the baby warm by heating the surrounding air. Open warmers are
used for babies who have just been born or need a lot of care
so that they can be reached and cared for more easily.
Once the baby's breathing rate is OK, the baby is placed in an
Isolette. The Isolette is a plastic box with controlled air
temperature to keep the baby warm. Babies grow fastest if they
are kept warm. When it is easier for a baby to maintain his
own temperature and the baby weighs about 4 pounds, he is
placed in an open crib.
- Monitors
All babies are attached to a heart and respiratory monitor
while they are in the SCN. These monitors sound an alarm if
there is a significant change in the baby's heart or breathing
rate. This alerts the staff to immediately check the infant.
The baby is also attached to a pulse oximeter, which records
the oxygen level in the baby's skin. In addition, there are
temperature alarms for the warming beds and Isolettes.
- Healthcare providers
Many people will help care for your baby during her stay in
the SCN.
The neonatologist is a pediatrician who has special training
in the care of premature infants. The neonatologist directs
the overall care of the baby. Nurses and physician assistants
help the neonatologist oversee the baby's progress.
Nurses deliver most of the hands-on care during each shift. A
very sick baby may have one nurse devoted solely to her care.
More stable babies may share a nurse with one or two other
babies.
The respiratory therapist oversees the breathing needs of
babies who need oxygen or are on ventilators.
The social worker helps families deal with the emotional
stress of having a sick baby.
The occupational therapist evaluates the infant's
developmental progress and plans a developmental program for
your child.
All of these people will be happy to talk with you at any time
about your baby.
- Visiting
The SCN staff welcome parents and families to visit their
babies as often as possible. The family's presence is very
important for the baby's growth and recovery. Sometimes the
baby is so sick at first that you may not be able to hold him
until he is better. However, touching, holding his hand,
talking, and watching are always welcome. The nurse will be
your best guide as to how much stimulation your baby can take
at one time. The older and more mature your baby is, the more
you will be able to handle and care for him. Phone calls are a
good way to keep in touch with the nursery staff and are
welcome at any time, day or night.
What problems do premature babies have?
There are many problems that a preterm baby faces during the first
weeks. The nursery staff expect these problems to occur and watch
for them. Most problems of prematurity improve as the baby grows.
Respiratory problems
- Respiratory distress syndrome (RDS)
Many babies born prematurely have not yet started making
surfactant. Surfactant is a substance that helps keep the
lungs open when breathing. Babies who have RDS need oxygen and
need help with their breathing until the lungs make
surfactant. A ventilator is used for 5 to 7 days to help the
baby breathe. The baby is given artificial surfactant to help
him breathe until the lungs make their own surfactant.
- Apnea
Apnea means "forgetting to breathe". Every small premature
baby has some apnea. Apnea occurs because the brain is still
immature. It improves as the brain matures. In the meantime,
the baby is given help to keep breathing. Medicine (for
example, aminophylline or caffeine) is given to stimulate
breathing. A device called a nasal cannula or a nasal CPAP may
be used to help give your baby extra oxygen and stimulate
breathing. Sometimes the baby is put on a respirator, which
breathes for her until she is able to breathe more reliably.
Babies who are born 12 weeks or more prematurely may not
breathe well for several weeks.
- Chronic lung disease
Many very preterm babies develop chronic lung problems. These
lung problems result from the underdevelopment of the lungs
and inflammation of the lungs caused by RDS, oxygen, and
respirators. These babies may need extra oxygen for weeks to
months. Sometimes a baby's lungs fill with extra fluid. If
this happens the baby is given diuretics, a medicine that
makes the baby urinate more and get rid of extra water.
Most children outgrow these lung problems during the first
several months of life. Some children may continue to have
problems with wheezing and infections, but usually get better
as they get older.
Feedings
Getting the baby to grow is the single most important thing to be
done to help him outgrow the problems of prematurity. Feedings are
very important. At first the baby may be too weak or have too much
trouble breathing to nurse or feed from a bottle. However, there
are ways the baby can get fluids and calories for growth without
breast or bottle-feeding. Later, when he is stronger, he can
breast or bottle-feed.
- Intravenous fluids (IVs)
Your baby will be given intravenous fluids (IVs) right after
birth. This IV fluid contains sugar to give the baby energy.
When a baby has serious breathing problems, he is not well
enough to begin feedings right away.
All babies lose weight during the first days of life because
their bodies get rid of extra water. Once the baby is given
food (either by IV or milk feedings), he will begin to gain
weight slowly. The smallest babies may take several weeks to
regain their birth weight.
- Hyperalimentation
Your baby will begin receiving hyperalimentation fluids soon
after birth to support her growth. These fluids are given
intravenously (IV). They contain sugar, protein, fat,
minerals, and vitamins. These fluids will give your baby
calories to start growing. Milk feedings will be gradually
increased and the hyperalimentation fluids decreased over
several days to weeks.
Very small premature babies often need several weeks of
hyperalimentation before they are ready to take all their milk
feedings. Because their veins are very small and thin and wear
out quickly, the very smallest babies need a central line,
called a PIC line, for hyperalimentation. A central line is an
IV which is placed in a central vein in the body. If possible,
an IV is put into a vein in the arm or leg and then threaded
into a major blood vessel. Sometimes surgery is needed to
place a central line in a neck or groin vein. A central line
allows the baby to be given higher concentrations of sugar and
calories for growth.
- Milk feedings
Feeding methods:
When the baby is ready, milk feedings are begun. All babies of
this size are too small and weak to suck on the breast or
bottle. Several methods of tube feeding allow dripping the
milk into the stomach or intestine without stressing the baby.
Gavage feedings involve passing a tube through the mouth or
nose and into the stomach. Milk is dripped in by gravity.
Because most small premature babies are fed every 3 hours, the
tube may be taped in place so that it does not have to be put
into the stomach each time the baby is fed. Very small babies
may be fed small amounts continuously so the stomach is never
overfilled. A feeding tube that passes through the nose and
the stomach and into the intestine is called a nasojejunal
tube. It allows milk to be fed directly into the intestine and
avoids filling the stomach.
Milk for premature infants:
Breast milk: Your breast milk is a very important food for
your premature infant. It has many important factors that
protect your baby against infection and it is also easily
digested. Because your premature baby can not nurse you will
need to pump your breasts to provide breast milk for your
infant. Your nurse can help show you how to pump milk. Your
breast milk may be "fortified" with extra protein and calories
to help your baby grow faster.
Premature formulas: There are formulas made specifically for
small premature infants. These formulas contain extra protein,
calories, and minerals to stimulate growth in a very tiny
baby.
Special formulas: Sometimes a baby needs a special formula
because of an allergy to milk protein or because he cannot
absorb nutrients from his intestine. Examples of such formulas
are Nutramigen or Pregestimil.
Your baby's doctor will talk to you about which kind of milk
he or she thinks is best for your baby.
Feeding by breast or bottle:
Premature babies are not able to suck and swallow until they
reach a gestational age of 32 weeks. Even then they may be
very weak and tire quickly when trying to suck. Babies need to
learn how to suck, swallow, and breathe all at the same time.
This takes many feedings to practice. Do not get discouraged
if it takes several weeks for your baby to learn what to do.
Breast-feeding is harder than bottle feeding for a premature baby
to master. The baby often has to suck harder to get milk out from
the breast than the bottle. But as your baby gets stronger and
bigger, breast-feeding will get easier for you and your baby. Your
nurse and the lactation consultant can help you practice
breast-feeding with your baby. Most of the time a baby will go
home taking both breast and bottle-feedings and will switch to
full breast-feeding over several weeks.
- Feeding intolerance
The premature baby's intestinal tract often doesn't work very
well at first. The baby's stomach may empty very slowly, and
it may be hard for the infant to pass bowel movements. The
baby may vomit often because of looseness of the valve between
the stomach and esophagus (gastroesophageal reflux). It is
easy for the baby to get distended (the bowel gets filled with
gas). These are all signs that the intestinal tract is
immature.
The amount of milk a baby is fed is usually increased very
slowly. It is important to make sure that the baby can manage
each increase well. There may be many starts and stops in the
feeding process. The baby's intestinal function improves as
she gets older. It may be several weeks before the very
smallest infants can take full milk feedings.
Necrotizing enterocolitis (NEC)
Necrotizing enterocolitis is a serious intestinal infection, which
some premature babies get. When a baby gets this infection, the
feedings don't pass through the intestine well and there is blood
in the bowel movements. If this infection is suspected, X-rays are
taken of the baby's intestines, feedings are stopped, and the baby
is given antibiotics. If the baby does have necrotizing
enterocolitis, antibiotics are continued and the baby is not fed
for 7 to 10 days. Sometimes surgery is needed. Once the baby
starts to recover from the infection and possibly surgery, he will
be fed with IV fluids until he is ready to start milk feedings
again.
Infection
Premature babies cannot protect themselves against infections very
well because their defenses are weak. Once infected, the baby can
get sick very quickly. For this reason your healthcare provider
will look closely for signs of infection whenever there is an
important change in the baby's behavior and will treat your baby
with antibiotics. Examples of such changes include increasing
apnea spells, other changes in breathing, and poor digestion of
feedings. Your baby may have several courses of antibiotics during
his hospital stay.
Intraventricular hemorrhage (IVH)
Very premature infants are at risk for bleeding in the brain
(intraventricular hemorrhage). Several ultrasounds of your baby's
head will be done during the first week to check for any sign of
bleeding. If bleeding occurs, your healthcare provider will
continue using ultrasounds to look for any signs of problems.
Retinopathy of prematurity (ROP)
While inside the mother, the baby lives in a low-oxygen, dark
place: the uterus. After birth, the baby is exposed to more oxygen
and light. The eye responds to these changes by growing extra
blood vessels. This process is called retinopathy of prematurity.
The younger the baby is, the more sensitive the retina (back of
the eye) is. Every baby who is born at a gestational age less than
28 weeks will have some retinopathy. This blood vessel growth
begins around 6 weeks after birth and usually increases until 10
to 12 weeks after birth. Then the blood vessels begin to go away.
If the blood vessels grow too much, there can be pulling on the
retina, which may cause the retina to separate from the back of
the eye. In its worst form, retinopathy can cause severe problems
with vision or even blindness.
Every baby born more than 8 weeks early will be examined by an
ophthalmologist (eye specialist). The first exam will be 6 weeks
after birth. The exams will continue until the blood vessels have
gone away. If the blood vessel growth starts to cause problems,
treatment with a laser or freezing (cryosurgery) can be done to
keep the retina from separating from the back of the eye.
Anemia
Every preterm baby becomes anemic (has too few red blood cells)
during the first 2 months of life. The baby loses blood from
frequent blood tests and when her red blood cells get old. She
cannot make new blood to replace the lost blood until 2 months
after birth. Most babies who are sick and need frequent blood
tests, or who weigh less than 3 pounds at birth, will need a blood
transfusion to keep the blood count normal. Your healthcare
provider will talk to you about why your baby needs a transfusion
when the time comes and tell you the risks and benefits of
transfusion.
Preterm babies are given extra iron in their diet so when their
bodies can make blood, they have plenty of iron for making new red
blood cells.
When can my baby go home?
Each baby recovers and grows at a different rate. There is no firm
rule for when a baby can leave the hospital. Generally, a baby is
ready to go home when he can keep his temperature in an open crib,
take all his feedings from the bottle or breast, and has been free
of apnea spells for a week.
If you need to have special equipment at home, the SCN staff will
help you arrange for it. They will teach you everything you need
to know about caring for your baby at home.
If you visit your baby frequently in the hospital, you will learn
how to feed and care for your baby long before he is ready to go
home. It is very important for your pediatrician to see your baby
often after going home from the hospital. Someone in the SCN will
make sure that you have an appointment with a pediatrician after
discharge.
What follow-up care does my child need?
Most very premature babies grow up to be normal, healthy children.
However, low-birth-weight babies are at greater risk for
developmental problems than babies that are not premature.
Premature babies also may need special medical attention during
their first year of life.
- Pediatric follow-up
Premature babies need to see their pediatrician often after
they leave the hospital. The pediatrician needs to make sure
that they are gaining weight well. It is also very important
that they get childhood immunizations to protect them against
infection.
Premature babies with chronic lung problems may need to be
examined often to be sure that they do not have problems with
wheezing or lung infections. It is not uncommon for these
babies to go back to the hospital if they get a bad cold that
causes wheezing and trouble with breathing. It is less likely
after the first year.
Visits to the pediatrician will become less frequent as your
baby gets older and healthier.
- Neurodevelopmental follow-up
A very small premature baby should be examined at a special
clinic that follows the baby's growth and progress. If a child
shows signs of developmental problems, special education or
therapy programs may help the child's development.
- Vision and hearing
All very small premature babies should have their eyes
examined for retinopathy. They should also have vision exams
regularly. Children who were premature may be at increased
risk for eye muscle problems and may need glasses.
All premature babies should have their hearing tested at least
once during their first year to make sure they do not have
hearing problems.
- Care at home
Once home, your baby will still need special care, such as
more frequent feedings. However, you will see your baby
quickly grow and become very healthy and strong. This will
reassure you that your baby is recovering and will be normal.
As is true for all babies, do not expose your baby
unnecessarily to children or adults with colds or the flu.
Babies with chronic lung disease are more likely to get upper
respiratory infections. It may not be a good idea to take your
child to a group day-care home or center in the first year.
As your baby grows you can treat him more and more like a
normal infant. Try not to be overprotective. Your pediatrician
will be able to guide you as your baby grows and thrives.
Written by Patricia Bromberger, MD, neonatologist, Kaiser Permanente, San Diego, CA.
This content is reviewed periodically and is subject to
change as new health information becomes available. The
information is intended to inform and educate and is not a
replacement for medical evaluation, advice, diagnosis or
treatment by a healthcare professional.
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