This information is approved and/or reviewed by U-M Health System providers but it is not a tool for self-diagnosis or a substitute for medical treatment. You should speak to your physician or make an appointment to be seen if you have questions or concerns about this information or your medical condition.
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Down Syndrome: Resource List

Books for Children

Ages 3 to 8

  • 1 2 3 for You and Me; by Margaret Girnis; Albert Whitman, 2001
  • Are There Stripes in Heaven?; by Lee Klein, Pam Mauseth (illustrator); Paulist Press, 1994
  • Be Good to Eddie Lee; by Virginia Fleming, Floyd Cooper (illustrator); Philomel Books, 1993
  • Big Brother Dustin; by Alden R. Carter, Dan Young (photographer), Carol Carter (illustrator); Albert Whitman & Co, 1997
  • Cookie; by Linda C. Kneeland; Jason & Nordic Pub, 1999
  • Dustin's Big School Day; by Alden R. Carter; Albert Whitman & Co, 1999
  • Russ and the Firehouse; by Janet Rickert; Woodbine House, 2000
  • Thumbs Up, Rico!; by Maria Testa, Diane Paterson (illustrator); A. Whitman, 1994
  • Veronica's First Year; by Jean Sasso Rheingrover, Kay Life (illustrator); A. Whitman, 1996 (for sibling)

Ages 8 to 12

  • Down Syndrome; by Kristina Routh; Heinemann Library, 2004
  • Everything You Need to Know About Down Syndrome; by Mary Bowman-Kruhm; Rosen, 1999
  • I Can, Can You?; by Marjoire Pitzer; Woodbine House, 2004
  • Let's Talk About Down Syndrome; Melanie Gordon; PowerKids Press, 1999
  • Living With Down Syndrome; by Jenny Bryan; Raintree-Steck-Vaugh, 1999
  • Luke Has Down Syndrome; by Jillian Powell; Chelsea Clubhouse, 2005
  • Radiance Descending; by Paula Fox; DK Ink, 1997 (for sibling)

Young Adult

  • Let's Talk About Down Syndrome; by Melanie Apel Gordon; Rosen, 1999

Books for Adults

  • Adventures in the Mainstream: Coming of Age with Down Syndrome; by Greg Palmer; Woodbine House, 2005
  • A Parent's Guide to Down Syndrome: Toward a Brighter Future, rev. ed.; Siegfried M. Pueschel; Paul H. Brookes Pub. Co., 2001
  • Adolescents with Down Syndrome: Toward a More Fulfilling Life; by Siegfried Pueschel; Paul H. Brookes Pub., 1997
  • Babies with Down Syndrome: A New Parents' Guide; by Karen Stray-Gundersen; Woodbine House, 1995
  • Communication Skills in Children with Down Syndrome: A Guide for Parents; by Libby Kumin; Woodbine House, 1994
  • Coping with Down's Syndrome; by Fiona Marshall; Sheldon Press, 2005
  • Down's Syndrome - Children Growing Up; by J. H. Carr; Cambridge University Press, 1995
  • Down Syndrome Nutrition Handbook: A Guide to Promoting Healthy Lifestyles; by Joan Medlen; Woodbine House, 2002
  • Down Syndrome: The Facts; by Mark Selikowitz; Oxford University Press, 1997
  • Down Syndrome: Successful Parenting of Children with Down Syndrome; by John Unruh; Fern Ridge Press, 1994
  • Early Communication Skills in Children with Down Syndrome; by Libby Kumin; Woodbine House, 2003
  • Fine Motor Skills for Children with Down Syndrome: a Guide for Parents and Professionals; 2nd ed; by Maryanne Bruni; Woodbine House, 2006
  • Gross Motor Skills in Children with Down Syndrome: A Guide for Parents and Professionals; by Patricia C. Winders; Woodbine House, 1997
  • Improving the Communication of People with Down Syndrome; Jon Miller; Paul H. Brookes Pub., 1999
  • Teaching Children With Down Syndrome About Their Bodies, Boundaries, And Sexuality: A Guide For Parents And Professionals; by Terri Couwenhoven; Woodbine House, 2007
  • Your Child has a Disability - A Complete Sourcebook of Daily and Medical Care; by M. L. Batshaw; Little, Brown and Co., 1998

Other Resources

National Down Syndrome Society
666 Broadway
8th Floor
New York, NY 10012-2317
800-221-4602
212-460-9330
Web site: http://www.ndss.org
Information pamphlets and clinical care booklets; educational videos; referrals on an 800 hotline; a free information packet is available.

Compiled by Catherine Smith, MLS, medical librarian at the Family Health Library, The Children's Hospital, Denver, CO.
Published by RelayHealth.
Last modified: 2008-08-11
Last reviewed: 2008-05-29
This content is reviewed periodically and is subject to change as new health information becomes available. The information is intended to inform and educate and is not a replacement for medical evaluation, advice, diagnosis or treatment by a healthcare professional.
© 2009 RelayHealth and/or its affiliates. All Rights Reserved.
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