Cystic Fibrosis: Resource List
Books for Children
Ages 4 to 8
- Taking Cystic Fibrosis to School; Cynthia Henry; JayJo
Books, 2000
Ages 9 to 12
- Cystic Fibrosis; by Susan D. Gold; Crestwood House,
2000
- Miguel and Sarah: Close Friends and Cystic Fibrosis; by
Andrea C. Dowell; Children's Hospitals and Clinics
(Minneapolis, MN), 1999
Young Adult
- Cystic Fibrosis; by Judy Monroe; LifeMatters, 2001
- Living with Cystic Fibrosis; by Susan Gray; Child's World, 2002
Books for Adults
- Breathing for a Living: A Memoir; by Laura Rothenberg;
Hyperion, 2004
- Cystic Fibrosis: Everything You Need to Know; by Wayne
Kepron; Firefly Books, 2004
- Cystic Fibrosis: A Family Affair; by Jane Chumbley;
Sheldon, 1999
- Cystic Fibrosis: A Guide for Patient and Family; by
David M. Orenstein; 3rd ed.; Lippincott-Raven Publishers,
2004
- Living With Cystic Fibrosis; by Susan Gray; Childs World, 2002
Other Resources
Cystic Fibrosis Foundation
6931 Arlington Road
Bethesda, MD 20814
800-344-4823
301-951-4422
Web site: http://www.cff.org/
Educational, research and resource materials.
Compiled by Catherine Smith, MLS, medical librarian at the Family Health Library, The Children's Hospital, Denver, CO.
This content is reviewed periodically and is subject to
change as new health information becomes available. The
information is intended to inform and educate and is not a
replacement for medical evaluation, advice, diagnosis or
treatment by a healthcare professional.
Copyright © 2006 McKesson Corporation and/or one of its subsidiaries. All Rights Reserved.
